All the Rules Keep Getting Broken- This Time for the Better!
So we are always pretty sure that "weekends don't count." The doctors are around, but busy and trying to get home. Not much happens. And then last weekend was the bleeding debacle (the doctors for a...
View ArticleThe Luxury of Impatience
Eirik had pulmonary tests and went to the transplant team clinic this week. His PFT was at 15% or 0.64. He did two laps up and down the hallway for his six minute walk. (It was a triumph that he didn’t...
View ArticleShort and Sweet
So there hasn’t been much going on, so there isn’t much to report. I’m thankful for the quiet days, even if I rather be blogging about a successful transplant. Time is very fluid now and it keeps...
View ArticleSix Months and Counting!
We are approaching the six months of waiting date, and I’m weirdly proud of that. While, obviously, I wish we got the call earlier, something about the six month anniversary makes me feel more entitled...
View ArticleEirik Has New Lungs!
I've been putting off this blog entry, because I don't know where to begin. It's been a crazy couple of weeks. Eirik got the call on August 25th, and finished surgery on August 27th. He's had pretty...
View ArticleA Wee Bit of Rejection
So here's what's up:1. I am incredibly burnt out. Which is why I don't post on here very much. The transplant journey is full of bumps and turns. It's stupid, it's wonderful, it's exhausting. I hate...
View ArticleEverything is Awesome
For a long time, I updated this blog to sort out the medical madness I was surrounded by. It helped me keep track of what the heck was happening. Now that I have nothing but good news, I haven't...
View ArticleRejected Part Two
A word from Eirik on the latest transplant news and why we still fundraise:read more
View ArticleKaren's Walk This Weekend
This morning Eirik is doing a gastric emptying test, yet another test in the many GI tests he's been doing, in an effort to figure out why he is lung functioning like a rock star, but his body is still...
View ArticleRejection Lite or Just Another Day Making Medical History
A word from Eirik:So, last time I updated about my health I mentioned A2 rejection and the buttload of highly invasive and radioactive tests looming on the horizon. And then I kind of forgot to follow...
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